Support Groups and Programs

C.S. Mott Children's Hospital has many different support programs available to patients and families.


  • Cystic Fibrosis Family Education Night: An annual conference for an adult audience of parents and other interested relatives or caregivers of children with Cystic Fibrosis seen at the UM Cystic Fibrosis Center. For more information, e-mail [email protected].

  • Family Education Events for Hemophilia: Several community events are held each year for families with children with Hemophilia. The events promote support and education. For information, contact Laura Mcginity, LMSW, at 734-936-6393.

  • First Friday NICU Family Nights: On the first Friday of each month, NICU families are invited to the Family Center from 6-8 p.m. to have dinner and visit with other NICU families and graduates. Pizza, salad and drinks are served. Scrapbooking supplies and Hope Beads are available. 

  • Hemophilia and Bleeding Disorders Parent Group: Meets monthly to discuss issues related to hemophilia, resources, etc. For information, contact Laura Mcginity, LMSW, at 734-936-6393.

  • Hope Beads: Families can construct a necklace made from beads that symbolize their NICU journey. This opportunity is scheduled every Monday and Thursday from 4-6 p.m. and at First Friday NICU Family Nights. 

  • NICU Scrapbooking: On Mondays and Thursdays from 4-6 p.m., NICU parents are welcome to bring photos, footprints and other memorabilia to the conference room to preserve memories and get to know other parents. Scrapbooks are provided. Hope Beads are also offered at this time. Scrapbooking also is available in the Family Center during open hours. For more information, contact Brenda Miller at 734-615-7937 or [email protected].

  • Parent Mentor Program: The Brandon NICU has specially trained graduate parents available to offer peer support. Their NICU experiences make them especially helpful to parents struggling with the challenges of having their baby in the unit. For more information, contact Social Work or the NICU.

  • Pediatric Brain Injury Summer Program: The focus of this program is to promote social success, community experiences and study smart skills in children and adolescents who are recovering from and adapting to a brain injury. The program is individually designed to meet a child/teen's treatment goals, with an emphasis on functional and fun-filled activities. The treatment day may include a combination of individual and group therapies, recreational therapeutic trips and specialized Parent Guidance and Support Group sessions. For more information, contact Diane DeVoogd at [email protected].

  • Pediatric Epilepsy Support Services: The Pediatric Epilepsy Program offers a variety of education and support services for families. This includes a weekly Caregiver Support Group, quarterly e-Newsletter, quarterly educational webinars and individualized education and consultation. For more information, contact Russ Derry at 734-615-1258 or [email protected].

  • Remembering the Children of Mott: This is an annual memorial service of remembrance sponsored by departments of Spiritual Care, Social Work and Child and Family Life. The memorial is intended for families who have experienced the death of a child either during or following hospitalization. For more information, call 734-936-4041 or e-mail [email protected].

  • Walk to Remember and Tree Planting Memorial: This annual event is held each October for families of our neonatal intensive care unit (NICU), pediatric intensive care units (PICU), Birthing Center and fertility clinic, and pediatric cardiothoracic intensive care unit (PCICU) who have experienced the loss of an infant
    or pregnancy. The event is also open to the public, especially those community members who have experienced a pregnancy or newborn loss. The Arboretum co-sponsors the event. For more information, contact Molly Gates at 734-232-7887.