Resources for Congenital Heart Patients

Preparing for Your Procedure: Regardless of what procedure your child is coming to the Congenital Heart Center for, it is useful to know about the support and tools available. This guide will help you understand what is needed to prepare your child emotionally, socially and medically.

Preparándose para su procedimiento (en español)

Single Ventricle Congenital Heart Defects Guidebook: Support and education for patients, parents and families about single ventricle congenital heart defects.

Your Heart Guidebook: Valuable information, special resources and practical tools to help guide and support you throughout your child’s journey. This book is intended to be brought with you to each clinic visit, procedure, or admission and continued to be referenced at home.

WE BEAT

WE BEAT is a free virtual wellness group for young adults with congenital heart disease to learn skills to support well-being. Learn more about the group here

Upcoming Expert Webinars

  • Tuesday, January 21, 2025 - 7 - 8 p.m.

Travel Planning: Carry Your Umbrella. Preparing for domestic and international travel with ACHD - Mark Norris, M.D. Plan ahead to reduce the risk and stress of travel.

In this webinar, we will discuss medical record access, emergency care planning for cardiac and non-cardiac illnesses, air travel safety, and activity specific planning for altitude, scuba diving, and more. The session will include a question and answer portion. 

REGISTER

View Past Webinars

Support and Educational Events for Patients and Families