Resources for Congenital Heart Patients

Preparing for Your Procedure: Regardless of what procedure your child is coming to the Congenital Heart Center for, it is useful to know about the support and tools available. This guide will help you understand what is needed to prepare your child emotionally, socially and medically.

Preparándose para su procedimiento (en español)

Single Ventricle Congenital Heart Defects Guidebook: Support and education for patients, parents and families about single ventricle congenital heart defects.

Your Heart Guidebook: Valuable information, special resources and practical tools to help guide and support you throughout your child’s journey. This book is intended to be brought with you to each clinic visit, procedure, or admission and continued to be referenced at home.


WE BEAT is a free virtual wellness group for young adults with congenital heart disease to learn skills to support well-being. Learn more about the group here

Upcoming Expert Webinars

Tuesday, August 27, 2024 – 7 p.m. EST 
Focus on Exercise with Congenital Heart Disease - Jesse Hansen, MD 
Physical activity and exercise are important parts of healthy heart care, especially for those living with congenital heart disease. Dr. Hansen helps clear away some of the common misconceptions about exercising for heart health and focuses on finding ways to move that feel good, build self-confidence, and empower individuals to take ownership of their health. 


View Past Webinars 

Support and Educational Events for Patients and Families