Resources for Congenital Heart Patients

Preparing for Your Procedure: Regardless of what procedure your child is coming to the Congenital Heart Center for, it is useful to know about the support and tools available. This guide will help you understand what is needed to prepare your child emotionally, socially and medically.

Preparándose para su procedimiento (en español)

Single Ventricle Congenital Heart Defects Guidebook: Support and education for patients, parents and families about single ventricle congenital heart defects.

Your Heart Guidebook: Valuable information, special resources and practical tools to help guide and support you throughout your child’s journey. This book is intended to be brought with you to each clinic visit, procedure, or admission and continued to be referenced at home.

WE BEAT

WE BEAT is a free virtual wellness group for young adults with congenital heart disease to learn skills to support well-being. Learn more about the group here

Upcoming Expert Webinars

  • Tuesday, October 22, 2024 – 7 p.m. EST

Women's Health in Congenital Heart Disease - Angela Quain, M.D.

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In this webinar, we will be discussing a variety of topics in Women's Health, including heart-healthy preventive care, contraception, gynecologic and reproductive health in teenagers and women with congenital heart disease. Dr. Quain will highlight important conversations to have with your doctors and answer questions you didn't know you had about taking care of yourself and getting the care that you deserve. 

View Past Webinars 

Support and Educational Events for Patients and Families