Patient Stories Congenital Heart Center

Patient stories listed by condition and treatment

Aortic Arch Aneurysm

Woman smiling

Casey’s story: Bound by Marfan Syndrome, a Family Encourages Awareness

After a multigenerational diagnosis of a congenital heart defect, one close-knit Michigan family is committed to living life to the fullest. 

Aortic Stenosis

Breck Vroegindewey

Breck’s story: Tiny Heart Repaired While Baby Still in Womb

How a critical heart defect — found in about 6 in 1,000 infants, and treatable in utero at just a handful of hospitals — was detected and treated, all before baby Breck’s birth

Arterial Switch Operation

Little Girl on Bed Smiling

Rosie’s Story: Family Travels from L.A. to Ann Arbor for Baby’s Life Saving Heart Surgery

Couple shares their two-year journey, from a congenital heart defect diagnosis during pregnancy to seeking the best care for their now “daredevil” toddler Rosie.

 

Fetal Intervention

Breck Vroegindewey

Breck’s story: Tiny Heart Repaired While Baby Still in Womb

How a critical heart defect — found in about 6 in 1,000 infants, and treatable in utero at just a handful of hospitals — was detected and treated, all before baby Breck’s birth.

 
 
Mira Larrison

Mira’s Story: Fetal Surgery for Hypoplastic Left Heart Surgery (HLHS)

A young mother learns her unborn baby has a serious heart defect and may not survive to birth. By bringing her to the Congenital Heart Center at Mott Children's Hospital, the baby, Mira, not only survived to birth but continues to thrive.

 
Ryleigh Ostrander

Ryleigh’s Story: Fetal Intervention Saves Ryleigh’s Heart

A fetal diagnosis and treatment gives baby with hypoplastic left heart syndrome and her family a head start on healing – and bonding.

 

Heart Failure

Family 

Chino’s story: After Collapse at a Basketball Game, 7th-Grader Saved by Heart Transplant

Pediatric Transplant Week highlights the importance of organ donation for children like 12-year-old Chino, who can look forward to a healthy life, thanks to a new heart. 

 

boy in yard smiling

Landyn’s story: A New Heart Lets First-Grader ‘Finally Act Like a Kid’

When a congenital heart condition went undetected at birth, one family was shocked to learn their 4-year-old needed a transplant. But today, he’s thriving. 

 

 

Girl in Car

Madeline’s story: Healthy Tween Celebrates Her Transplant

As the anniversary of receiving her new heart draws near, a brave 9-year-old continues to enjoy her life like a typical kid.

 

 

Girl in Car

Maddie’s Story: Heart Transplantation for Restrictive Cardiomyopathy (video)

After becoming ill at six months old, Maddie was diagnosed with restrictive cardiomyopathy. Just after her first birthday, she received a life-saving heart transplant. Eight years later, Maddie is still thriving. 

 

Michigan Medicine Heartbeat Music

Matthew's story: Heartbeat Songs Offer Young Transplant Patient Special Gift

Music therapists create unique music based on the beat of a child’s first and second heart after a heart transplant. 

 

 

Rose's Story

Rose’s story: A Heart Transplant for Christmas

After countless hospital stays and years of medical tests and drug therapies, a sixth-grader receives the best Christmas present of her life.

Heart Transplant

boy in yard smiling

Landyn’s story: A New Heart Lets First-Grader ‘Finally Act Like a Kid’
When a congenital heart condition went undetected at birth, one family was shocked to learn their 4-year-old needed a transplant. But today, he’s thriving. 

 

 

Family

Chino’s story: After Collapse at a Basketball Game, 7th-Grader Saved by Heart Transplant
Pediatric Transplant Week highlights the importance of organ donation for children like 12-year-old Chino, who can look forward to a healthy life, thanks to a new heart. 

 

 

Girl in Car

Madeline’s story: Healthy Tween Celebrates Her Transplant
As the anniversary of receiving her new heart draws near, a brave 9-year-old continues to enjoy her life like a typical kid.

 

 

 

Girl in Car

Maddie’s Story: Heart Transplantation for Restrictive Cardiomyopathy (video)
After becoming ill at six months old, Maddie was diagnosed with restrictive cardiomyopathy. Just after her first birthday, she received a life-saving heart transplant. Eight years later, Maddie is still thriving. 

 

 

Michigan Medicine Heartbeat Music

Matthew's story: Heartbeat Songs Offer Young Transplant Patient Special Gift
Music therapists create unique music based on the beat of a child’s first and second heart after a heart transplant.

 

 

 

Rose's Story

Rose’s story: A Heart Transplant for Christmas
After countless hospital stays and years of medical tests and drug therapies, a sixth-grader receives the best Christmas present of her life.

Hypoplastic Left Heart Syndrome (HLHS)

Amelia

Amelia’s story: Going the Distance to Save Amelia’s Life
Long-distance trips to treat their daughter’s congenital heart defect stretched the Lahti family — until Save A Heart stepped in. 

 

 

 

John Daniel

John-Daniel’s story: TAVR Heart Procedure Performed on a Teen, a Rarity 
Sixteen years after preemie twins were born at U-M, the tightknit family returned to Ann Arbor for a unique solution to a pressing heart problem.

 

 

Keaton

Keaton’s story: 16-Year-Old Born With Half a Heart Gets Wish to Attend Masters PGA Tournament
A high school golfer with a severe congenital heart condition got his own Masters moment, thanks to Make-A-Wish Michigan. 
 

 

 

Mira

Mira’s Story: Fetal Surgery for Hypoplastic Left Heart Surgery (HLHS)
A young mother learns her unborn baby has a serious heart defect and may not survive to birth. By bringing her to the Congenital Heart Center at Mott Children's Hospital, the baby, Mira, not only survived to birth but continues to thrive.

 

Ryleigh

Ryleigh’s Story: Fetal Intervention Saves Ryleigh’s Heart
A fetal diagnosis and treatment gives baby with hypoplastic left heart syndrome and her family a head start on healing – and bonding. 

 

 

 

Sofia

Sofia’s Story: A Tiny Patient and Her Family Prepare to Heal
Cherub-faced Sofia was born with hypoplastic left heart syndrome, a congenital heart defect in which the left side of the heart is severely underdeveloped. 

 

 

 

Tommy

Tommy’s Story: All Heart Congenital Heart Center
Tommy Schomaker was born with "half a heart," but after five surgeries and with the care and support of a diverse team of professionals, it's blue skies and yellow suns ahead.

Hypoplastic Left Heart Syndrome with Restrictive or Intact Atrial Septum (HLHS-IAS)

Ryleigh

Ryleigh’s Story: Fetal Intervention Saves Ryleigh’s Heart
A fetal diagnosis and treatment gives baby with hypoplastic left heart syndrome and her family a head start on healing – and bonding.

Marfan Syndrome

Woman smiling

Casey’s story: Bound by Marfan Syndrome, a Family Encourages Awareness
After a multigenerational diagnosis of a congenital heart defect, one close-knit Michigan family is committed to living life to the fullest. 

Pulmonary Artresia

Ruby

Ruby’s story: Normalizing Congenital Heart Defects for Michigan Families
As their 16-month-old fourth child undergoes treatment for a complex heart condition, two parents find ways to help others on similar journeys. 

Restrictive Cardiomyopathy

four little victors

Brody, Kaine, Madeline & Thomas’ story: Four Miraculous ‘Little Victors,’ One First-Grade Classroom
Four youngsters in a tiny Michigan town each battled severe illness at C.S. Mott Children’s Hospital. Now, they’re all in the same first-grade class. 

 

 

boy in yard smiling

Landyn’s story: A New Heart Lets First-Grader ‘Finally Act Like a Kid’
When a congenital heart condition went undetected at birth, one family was shocked to learn their 4-year-old needed a transplant. But today, he’s thriving. 

 

 

Girl in Car

Madeline’s story: Healthy Tween Celebrates Her Transplant
As the anniversary of receiving her new heart draws near, a brave 9-year-old continues to enjoy her life like a typical kid. 

 

 

 

Girl in Car

Maddie’s Story: Heart Transplantation for Restrictive Cardiomyopathy (video)
After becoming ill at six months old, Maddie was diagnosed with restrictive cardiomyopathy. Just after her first birthday, she received a life-saving heart transplant. Eight years later, Maddie is still thriving. 

Tetralogy of Fallot

four little victors

Brody, Kaine, Madeline & Thomas’ story: Four Miraculous ‘Little Victors,’ One First-Grade Classroom
Four youngsters in a tiny Michigan town each battled severe illness at C.S. Mott Children’s Hospital. Now, they’re all in the same first-grade class. 

 

 

Nina

Nina’s story: Open-Heart Surgery at 4 Months Old
While 22 weeks pregnant, Fiona Linn learned her unborn daughter had a heart defect, requiring surgery. Here, she tells her family’s story. 

 

 

Rose's Story

Rose’s story: A Heart Transplant for Christmas
After countless hospital stays and years of medical tests and drug therapies, a sixth-grader receives the best Christmas present of her life. 

 

 

Ruby

Ruby’s story: Normalizing Congenital Heart Defects for Michigan Families
As their 16-month-old fourth child undergoes treatment for a complex heart condition, two parents find ways to help others on similar journeys. 

Total Anomalous Pulmonary Venous Return (TAPVR)

Mila

Mila’s story: Newborn Screening Catches Critical Heart Condition
Mila’s story highlights the importance of the 4-year-old mandatory statewide newborn heart defect screening program.

Transcatheter Aortic Valve Replacement (TAVR)

John Daniel

John-Daniel’s story: TAVR Heart Procedure Performed on a Teen, a Rarity 
Sixteen years after preemie twins were born at U-M, the tightknit family returned to Ann Arbor for a unique solution to a pressing heart problem.

Transposition of the Great Arteries (TGA)

Family

Chino’s story: After Collapse at a Basketball Game, 7th-Grader Saved by Heart Transplant
Pediatric Transplant Week highlights the importance of organ donation for children like 12-year-old Chino, who can look forward to a healthy life, thanks to a new heart. 

 

 

charlotte

Charlotte’s story: Little Victor from Ohio Celebrates ‘Dual Loyalties’ Before the Big Game
After their baby’s successful open-heart surgery at the University of Michigan, a family of longtime Buckeyes are glad to champion the Wolverines, too. 

 

 

Little Girl on Bed Smiling

Rosie’s Story: Family Travels from L.A. to Ann Arbor for Baby’s Life Saving Heart Surgery
Couple shares their two-year journey, from a congenital heart defect diagnosis during pregnancy to seeking the best care for their now “daredevil” toddler Rosie.

Ventricular Septal Defect

charlotte

Charlotte’s story: Little Victor from Ohio Celebrates ‘Dual Loyalties’ Before the Big Game
After their baby’s successful open-heart surgery at the University of Michigan, a family of longtime Buckeyes are glad to champion the Wolverines, too.